The sibling perspective on childhood cancer is often the least recognized; our guest Rachna Prasad is an example of hope, inspiration, and dedication to a greater purpose. Her brother Mithil was afflicted with DIPG, the second most common and the deadliest pediatric brain cancer. As Vice President of the Mithil…
CCTR interviews Elizabeth Psar, an attorney with a focus in Juvenile law now on a mission against DIPG with the Julia Barbara Foundation. The discussion includes the realities of DIPG and her 2 1/2 year old daughter Julia, and the unavoidable effects of the experience of losing a child to…
There is a specialized killer loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. Dear President Obama, …
Childhood Cancer Talk Radio interviews Jesse Shumaker, founder of The Cure Starts Now Nebraska Chapter upon the loss of his 8 year old daughter Madelyn, who was afflicted with diffuse intrinsic pontine glioma (DIPG). The Cure Starts Now is non-profit charitable organization dedicated to funding DIPG research, raising well…
For immediate release Relay for Jack: Local Communities come together in support of National DIPG Awareness Week May 24, 2016, Santa Clarita, CA—HRes586 was introduced to the House of Representatives Energy and Commerce Committee on January 13, 2016, by Congressman Steve Knight (R-CA-25) the day after the Moonshot Initiative was…
Jack’s Angels Foundation announces its 1st Annual “Relay for Jack!” Saturday, May 28 at Vasquez Rocks County Park in Agua Dulce, raising awareness to DIPG—cancer’s death-row for kids; the 2nd most-common pediatric brain tumor is responsible for roughly 80% of brain cancer deaths in children annually. Event proceeds support “Jack’s…
Emma Wren of Alford UK, explains the realities of a DIPG diagnosis for her daughter Keira, and the experimental program with which Keira is involved to combat the deadly disease. Sharon Kane of “Funding Neuro”, joins us to discuss the technical details of the procedure and the origins of this…
From Northwestern University Feinberg School of Medicine Potential Therapy Found for Incurable Pediatric Brain Tumor Share on facebookShare on googleShare on twitterShare on emailMore Sharing Services44 by Nora Dunne on Nov 17, 2014 Diffuse intrinsic pontine glioma (DIPG) is inoperable because of the tumor’s vital location on the brainstem. Northwestern…
Jack’s Story Jack, James-William Gregory Demeter, was born a healthy baby boy, 7 lbs-7oz, 22”, a Saturday Night little man at 11:36pm, Aug. 30, 2008. Our Sophie-Marie was nicknamed “Boo” for the little girl in Monster’s Inc, and Jack-Jack was for the little guy from The Incredibles. Needless to say,…
