Lainey Titus Samant is the Director of Government Relations at the National Brain Tumor Society. Lainey oversees NBTS’s grassroots advocacy program that includes volunteer brain tumor advocates across the country and also works with the rest of the government relations team to monitor and influence legislation and appropriations that affect…
To Chairman Pallone, Ranking Member Walden, Chairwoman Eshoo, and Ranking Member Dr. Burgess: DIPG Advocacy Group and the undersigned are asking for your attention to the leading cause of cancer-related death in children, pediatric brain cancer, and H. Res. 114, the DIPG Awareness Resolution. We are asking for its process…
Grace Wethor is an 18-year-old actress, model, and author based in Los Angeles, CA. After being diagnosed with a brainstem glioma at age 13, and given an 8% chance of survival over 6 months, she moved to LA and started pursuing her dreams. Since then she has spoken about her…
A definite perspective emerges on what has become the Childhood Cancer Awareness Movement from one of its most influential advocates and supporters. Annette Leslie’s son, Carson Leslie, was afflicted with medullobastoma; before perishing to the disease, he wrote a book called “Carry Me” to give the benefit of his experience…
with Ellyn Miller and Amanda Haddock Today’s show features groundbreaking innovation for our medical research system to better accommodate the research needs for childhood cancer, inspired from the experiences of both of our guests who witnessed the urgent, unmet needs of children with brain cancer, the leading cause of cancer-related…
Hello, My name is Harold Mike Junge. My friends and family call me Mike…so let’s stick with that. It’s a pleasure to meet you! I’m reaching out to you to discuss something very important…and I hope you will give me just a few minutes of your valuable time. Hear me…
For CAC2 Membership. —If you or your organization would like to become a member, please visit the website membership portal. Last week CAC2 Board members presented our Spring All-Member Webinar. Every March we offer this webinar so that our members have a better understanding of what we are doing, why…
The Public needs powerful examples attain sufficient awareness to ensure accountability from Congress. If we want childhood cancer legislation like STAR and RACE to truly be supported, to have their respective allocations approved, to build upon and allow greater development and support for pediatric research, the Public must be aware–this…
March 20, 2020 Dr. Michael Prados (UCSF), leading scientist with PNOC (Pacific Pediatric Neuro-Oncology Consortium) and Dr. Adam Resnick (CHOP), leading scientist with the CBTTC (Children’s Brain Tumor Tissue Consortium) share important developments in pediatric cancer research and also a potential shift in the way research is conducted, and funded,…
Kayla Giacin, Manager, Quality of Life Programs and Marketing for Children’s Brain Tumor Foundation shares about upcoming events and current programs. Children’s Brain Tumor Foundation’s mission is to improve the treatment, quality of life and the long-term outlook for children and families affected by a brain or spinal cord tumor.…
