National Brain Tumor Society CEO Named to Cancer Moonshot Initiativeās Blue Ribbon Panel of Experts 2016-04-04 David F. Arons to represent patient advocates on the panel, which will help inform scientific direction for Vice President Bidenās National Cancer Moonshot Initiative National Brain Tumor Society (NBTS), the largest nonprofit organization inā¦
After Jack died I learned that DIPG is responsible for most of the brain tumor deaths in children, so, how many have to die until their lives are worth saving? April 2, 2016 Santa Clarita, CAāThe significant rise in awareness for the devastating lack of funding for research into causesā¦
Paul speaks in depth about his commitment to children with cancer, to speak for them and to carry the message that they are being systematically ignored by our medical research system. Paul volunteers for St. Baldrick’s Foundation, which gives most of it’s income to research and is the largest contributorā¦
Message from NIH to subscriber transmitted by Janet Demeter (JAF) 3-28-2016 Dear Colleague, The Common Fundās Gabriella Miller Kids First Pediatric Research (https://commonfund.nih.gov/KidsFirst) program (Kids First) is developing a data resource for the pediatric research community of well-curated clinical and genetic sequence data that will allow scientists to identify geneticā¦
Part I: Advocate for children with cancer Gerry Tye shares his experience with his son Talin, diagnosed with DIPG in 2012, and for parents the importance of trusting one’s instincts regarding one’s own child when confronted with medical protocol for terminal illness. Gerry supports children diagnosed with cancer and theirā¦
George Dahlman, CEO of the Childrenās Cause for Cancer Advocacy, talks about the importance of advocacy in affecting change in legislation and the way our Administration, Congress, and Government Agencies communicate to better accommodate the needs of our children with cancer.Ā Host Janet Demeter enjoys a rant about the “Greatā¦
