In Texas Style: Annette Leslie Raises the Bar for Funding Childhood Cancer Research

A definite perspective emerges on what has become the Childhood Cancer Awareness Movement from one of its most influential advocates and supporters. Annette Leslie’s son, Carson Leslie, was afflicted with medullobastoma; before perishing to the disease, he wrote a book called “Carry Me” to give the benefit of his experience…

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The First Ladies of Data

with Ellyn Miller and Amanda Haddock Today’s show features groundbreaking innovation for our medical research system to better accommodate the research needs for childhood cancer, inspired from the experiences of both of our guests who witnessed the urgent, unmet needs of children with brain cancer, the leading cause of cancer-related…

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Game Changer: Moonshot4Kids Congressional Briefing Brings Hope, New Research Opportunities to Pediatric Brain Cancer

Progress forward has come only from a collaborative effort by those who…could not turn away from this urgent, unmet need.  How much larger the effort would be…if more people were aware, and more people and resources joined us in this fight. Dr. Michelle Monje, Associate Professor of Neurology, and by…

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Support the SPORE Grant

Sample Letter (Janet Demeter) Letters of Support Needed for the CBTTC/PNOC NIH Pediatric Brain Cancer SPORE Grant FAQs From PNOC and CBTTC (download letter below) We are reaching out to you to request a letter of support for our NIH Pediatric Brain Tumor SPORE grant proposal. After discussing our initial plans…

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“Mr. BLUNT, from the Committee on Appropriations, submitted the following R E P O R T…”

Excerpt taken from p. 90 – 91 of the REPORT DEPARTMENTS OF LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION, AND RELATED AGENCIES APPROPRIATION BILL, 2020 Childhood Cancer Data Initiative.—The Committee strongly supports the budget request to focus $50,000,000 a year toward pediatric cancer research over the next 10 years. The…

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First Ascent Biomedical with Noah Berlow, Ph.D.

Noah Berlow received his PhD in electrical engineering following undergraduate studies in electrical engineering, computer science, and mathematics. His graduate work grew into a long-term collaboration with Dr. Charles Keller, then at Oregon Health & Sciences University. Upon graduating, he joined the non-profit mission-based biotech start-up, the Children’s Cancer Therapy…

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No Time to Lose: Advocacy Group Makes Congressional Hearing Request for Jace Ward, Diagnosed with the Deadliest Pediatric Cancer.

December 14, 2019dipgadvocate Thursday, Dec. 12, 2019, Santa Clarita, CA–Today a 2nd Hearing Request Letter was sent by the DIPG Advocacy Group to the Energy and Commerce Committee in US Congress for Jace Ward, a 20 year-old pre-law student from Wamego KS, diagnosed on May 17 of 2019 with DIPG, notorious for…

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