Fight for Owen, Find A Cure -from South Africa

Candice Hamman and Carl Jansen VanVuuren tell the story of their son Owen who was diagnosed in June 2020 with DIPG, diffuse intrinsic pontine glioma.  There are no treatment options besides the standard radiation and palliative care, and purchase of the experimental ONC201 from Germany.  Candice and Carl share from…

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The Rare Cancer Awareness, Research, and Treatment Act of 2020

The Shepherd Foundation is working with Congress to introduce a bill to position the rare cancer community for better outcomes. Founder and rare cancer patient David Hysong and CEO Catharine Young join us to discuss the recent virtual briefing with Congressman G.K.Butterfield (NC-1) and Gus Bilirakis (FL-12), Greg Simon, former…

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A New Day for Pediatric Brain Cancer Research

March 20, 2020 Dr. Michael Prados (UCSF), leading scientist with PNOC (Pacific Pediatric Neuro-Oncology Consortium) and Dr. Adam Resnick (CHOP), leading scientist with the CBTTC (Children’s Brain Tumor Tissue Consortium) share important developments in pediatric cancer research and also a potential shift in the way research is conducted, and funded,…

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Defying the Odds: Anjalie’s Miraculous Journey

Anjalie Bartee was a normal, healthy 17-year-old, a junior in high school in Omaha, NE when she began experiencing headaches and vision changes.  Her doctor thought it might be due to recent changes in her medication, but the condition persisted and worsened; the ophthalmologist detected pressure on the brain and…

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#DIPGwontWait with Lisa and Jace Ward, DIPG Advocacy Group

DIPG Advocacy Group co-founders Elizabeth Psar and Paul Miller join us to help give the background story to the group, how it formed and why; Also joining us is Lisa Ward, a new addition to the Admins of DIPG Advocacy Group, who’s son Jace Ward, a 20 year old pre-law…

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Lady Bug House, Adding Life to Days with Suzanne Gwynn

“If we cannot add days to the life of a child, we will add life to their days,” Suzanne Gwynn, nurse of 40 years, founder of LadyBug House. As a nonprofit, Ladybug House will offer intermittent stays to families who are caring for their children with life-threatening illnesses so they…

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First Ascent Biomedical with Noah Berlow, Ph.D.

Noah Berlow received his PhD in electrical engineering following undergraduate studies in electrical engineering, computer science, and mathematics. His graduate work grew into a long-term collaboration with Dr. Charles Keller, then at Oregon Health & Sciences University. Upon graduating, he joined the non-profit mission-based biotech start-up, the Children’s Cancer Therapy…

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