Please submit letters to PNOC/CBTTC by 3-30-2020 Directions What is the novel SPORE Grant? March 15, 2020 To NCI/NIH Leadership: I’m writing in support of the NIH Pediatric Brain Tumor SPORE grant proposal to be submitted by Dr. Resnick and Dr. Prados on behalf of PNOC and CBTTC multi-institutional research…
Progress forward has come only from a collaborative effort by those who…could not turn away from this urgent, unmet need. How much larger the effort would be…if more people were aware, and more people and resources joined us in this fight. Dr. Michelle Monje, Associate Professor of Neurology, and by…
Sample Letter (Janet Demeter) Letters of Support Needed for the CBTTC/PNOC NIH Pediatric Brain Cancer SPORE Grant FAQs From PNOC and CBTTC (download letter below) We are reaching out to you to request a letter of support for our NIH Pediatric Brain Tumor SPORE grant proposal. After discussing our initial plans…
DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure. Congresswoman Jackie Speier (D-CA-14), leading sponsor of the DIPG Awareness Resolution Posted by the PNOC…
Anjalie Bartee was a normal, healthy 17-year-old, a junior in high school in Omaha, NE when she began experiencing headaches and vision changes. Her doctor thought it might be due to recent changes in her medication, but the condition persisted and worsened; the ophthalmologist detected pressure on the brain and…
Whether it’s from a pediatric cancer or a freak accident, the loss of a child is perhaps the most devastating experience imaginable. Ernie Jackson, author of Quinton’s Messages and Quinton’s Legacy, lost his son Quinton to an accident and shares how he gained a constant and very real companion in…
DIPG Advocacy Group co-founders Elizabeth Psar and Paul Miller join us to help give the background story to the group, how it formed and why; Also joining us is Lisa Ward, a new addition to the Admins of DIPG Advocacy Group, who’s son Jace Ward, a 20 year old pre-law…
“If we cannot add days to the life of a child, we will add life to their days,” Suzanne Gwynn, nurse of 40 years, founder of LadyBug House. As a nonprofit, Ladybug House will offer intermittent stays to families who are caring for their children with life-threatening illnesses so they…
Bryanna’s Love was founded in honor of Bryanna Kitchen, who was diagnosed with Early T-cell Precursor Acute Lymphoblastic Leukemia (ETP-ALL) only 3 weeks after her 9th birthday. One of the few things that gave her the strength to smile during this time was the many stuffed animals and the blanket…
Excerpt taken from p. 90 – 91 of the REPORT DEPARTMENTS OF LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION, AND RELATED AGENCIES APPROPRIATION BILL, 2020 Childhood Cancer Data Initiative.—The Committee strongly supports the budget request to focus $50,000,000 a year toward pediatric cancer research over the next 10 years. The…
