Progress forward has come only from a collaborative effort by those who…could not turn away from this urgent, unmet need. How much larger the effort would be…if more people were aware, and more people and resources joined us in this fight. Dr. Michelle Monje, Associate Professor of Neurology, and by…
‘We don’t do those anymore…’ Now what? Despite progress made, resistance to this awareness will continue to recur intermittently, like a rash, until “The Little Bill that Could” passes. This is a brief description of an occasional yet pervasive challenge which DIPG Advocacy Group has met in its visits to…
January 30, 2018, Santa Clarita, CA–One year ago today, Congressman Steve Knight (R-CA-25) introduced with Congresswoman Jackie Speier (D-CA-14) H.Res.69, the National DIPG Awareness Resolution to the House Energy and Commerce Committee. The Resolution persists today, amid an intensive political landscape in 2018, for children with the deadliest pediatric brain…
January 23, 2018, Santa Clarita, CA–Amid an intensive political landscape in 2018 persists an National Awareness Resolution, H.Res.69, for children with the deadliest pediatric brain cancer, DIPG: diffuse intrinsic pontine glioma. Not only does the bill call for an Awareness Day for these children and their families, May 17, it…
Ann Graham, CEO of MIB Agents–Make-It-Better-Agents–and osteosarcoma survivor, joins us to discuss the great strides in improving outcomes for osteosarcoma patients which her organization accomplishes as they move forward. The FACTOR Conference began last year in 2017 and was enormously successful in bringing top oncologists, clinicians, patient families and advocates…
CCTR interviews Laura Thrall, CEO of CureSearch since 2012, with five years of refining purpose, innovation, and efficiency in the medical research industry to benefit pediatric cancer research funding. The primary goal and measure of the success of any new policy should be evident in patient care, access, and improved…
