Emma Wren of Alford UK, explains the realities of a DIPG diagnosis for her daughter Keira, and the experimental program with which Keira is involved to combat the deadly disease. Sharon Kane of “Funding Neuro”, joins us to discuss the technical details of the procedure and the origins of this…
Congressman Knight Attends Santa Clarita Event 2/13 Celebrating HRes586, Chad and Jack’s DIPG Resolution “More still needs to be done for our kids; while I was hopeful of Moonshot, I also noticed that it continues to marginalize childhood cancer, where it should be front and center of the Initiative,” said…
Thursday, Feb. 4 at 4pm EST, CCTR interviews Jonathan Agin, Development Liaison and General Counsel for the Children’s Cancer Therapy Development Institute, or CC-TDI, a non-profit biotech company dedicated to eradicating childhood cancer in all forms. Jonathan is an attorney by trade and has become one of the United States…
Lisa Solis DeLong, Author of “Blood Brothers”–a memoir of loss and faith while raising two sons with cancer Lisa’s book, “Blood Brothers” http://bit.ly/LisaDelong / Lisa’s Tedx talk on “Death Cafe” http://bit.ly/lisadelong Lisa Solis DeLong, author, nurse, bereavement facilitator, patient advocate, and last but not least–mom!–joins us for a candid discussion…
Give them back their childhood: Funding plea for pioneering treatment of rare brain tumour that no child has survived Most die within months of diagnosis of intrinsic pontine glioma (DIPG) Innovative treatment targets tumour directly rather than intravenously New technique also means there is no risk of side effects like hair…
“Chad and Jack’s DIPG Resolution” (unofficially titled for Chad Carr of Michigan, and Jack Demeter, of California) http://knightforms.house.gov/news/email/show.aspx?ID=QL2FAABJSRT6G “Letter to Colleagues” by Adam Brooks (introductory letter to Resolution) / Resolution Text KNIGHT INTRODUCES BIPARTISAN CHILDHOOD CANCER RESEARCH BILL CONGRESSMAN WORKING WITH AGUA DULCE RESIDENT TO INCREASE…
Chad and Jack’s DIPG Resolution and Childhood Cancer; is it relevant? The Resolution is named for Chad Carr of Michigan and Jack Demeter of California, both beloved and perished to DIPG. …this is about making a decision, a decision to not look away, but to acknowledge the relevance of life.…
pdf version Janet Demeter, Santa Clarita CA November 13, 2015 My son’s story is similar to many DIPG-diagnosed children; it is unique because he was precious, as all children are precious. It is my hope that it may help shed light on this experience that is DIPG, that more will…
For partnering organizations, groups, individuals. Jack’s Angels Foundation: Advocacy Report and General Update for Collaborative Individuals, Groups, and Organizations “What your money’s been doing.” General Description: This follows a journey in advocacy for children and their families with DIPG, that more can be done for them in the future, and…
On October 17, ‘4Another’ finishes its Across-the-USA Run for Childhood Cancer Awareness with local Jack’s Angels runner at the Santa Monica Pier. Monday, October 5, 2015, Santa Clarita CA—John McKay and Everett Smith began their cross-country run on June 6, 2015 in Virginia Beach, VA, and their final three days…
