Progress forward has come only from a collaborative effort by those who…could not turn away from this urgent, unmet need. How much larger the effort would be…if more people were aware, and more people and resources joined us in this fight. Dr. Michelle Monje, Associate Professor of Neurology, and by…
Sample Letter (Janet Demeter) Letters of Support Needed for the CBTTC/PNOC NIH Pediatric Brain Cancer SPORE Grant FAQs From PNOC and CBTTC (download letter below) We are reaching out to you to request a letter of support for our NIH Pediatric Brain Tumor SPORE grant proposal. After discussing our initial plans…
Excerpt taken from p. 90 – 91 of the REPORT DEPARTMENTS OF LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION, AND RELATED AGENCIES APPROPRIATION BILL, 2020 Childhood Cancer Data Initiative.—The Committee strongly supports the budget request to focus $50,000,000 a year toward pediatric cancer research over the next 10 years. The…
Noah Berlow received his PhD in electrical engineering following undergraduate studies in electrical engineering, computer science, and mathematics. His graduate work grew into a long-term collaboration with Dr. Charles Keller, then at Oregon Health & Sciences University. Upon graduating, he joined the non-profit mission-based biotech start-up, the Children’s Cancer Therapy…
jackangel 27 December, 2019 Uncategorized click picture for podcast Goodbye Little Dude is the remarkable story about seven-year-old Jonathan, his classmates, and a pet turtle named Little Dude. While Jonathan is unable to care for his beloved turtle on his own, Little Dude thrives and grows under the tender care…
December 14, 2019dipgadvocate Thursday, Dec. 12, 2019, Santa Clarita, CA–Today a 2nd Hearing Request Letter was sent by the DIPG Advocacy Group to the Energy and Commerce Committee in US Congress for Jace Ward, a 20 year-old pre-law student from Wamego KS, diagnosed on May 17 of 2019 with DIPG, notorious for…
jackangel 10 December, 2019 Uncategorized As originally published by the National Cancer Institute December 3, 2019, by NCI Staff The expanding use of genomic tests has raised questions about the risks and benefits of sharing personal genomic data.Credit: National Cancer Institute Last spring, at the end of his sophomore year…
“While we wait,” declared Jace Ward from Wamego Kansas, to an NIH Symposium on genomic data sharing in September, 2019, “DIPG won’t wait! It won’t wait to take my mobility, my sight, my speech and my life…” With an extraordinary opportunity to shine a light on one of the darkest…
Ricardo Garcia, CEO, Cesare Spadoni, COO, and Jonathan Agin, Head of Patient Advocacy for Oncoheroes Biosciences join us to discuss this relatively new company, founded in 2017, and it’s unique and thoughtful approach to childhood cancer research. The families of each of the three gentlemen have each been affected directly…
Today’s show features Nancy Goodman and Kids v. Cancer, the notable leader in childhood cancer advocacy and legislation in the United States. Nancy wrote the Creating Hope Act of 2012, which has created over $1B in funding for pediatric cancer research in the private sector with the Pediatric Priority Review…
