Kathy Riley talks to CCTR about We Can Pediatric Brain Tumor Network, which began 20 years ago with the support and camaraderie between mothers of pediatric brain tumor patients. The support and healing which came from their sharing was so helpful that they wanted to share it with others. The…
Max Wallace, President and CEO of ABC2–Accelerate Brain Cancer Cure, talks about founder and venture capitalist Dan Case who had been afflicted with, and ultimately died of brain cancer. ABC2 has for a model Dan’s genius for taking risks fearlessly and applying the venture approach to brain cancer research and…
Today’s show features creative solutions to difficulties in treating childhood cancer with the Children’s Cancer Therapy Development Institute, cc-TDI, devoted to making all forms of childhood cancer survivable. Co-founder, advocate for kids with cancer, and writer Jonathan Agin, and Scientific Director Dr. Charles Keller talk with CCTR. Learn about a…
For Immediate Release pdf. version April 19, 2016 Santa Clarita, CA—Ultra-distance runner and activist for children with cancer Everett Smith of Redlands, CA and Janet Demeter of Jack’s Angels in Agua Dulce, CA team up to promote “Action Days” for HRes586 in support of children currently afflicted with DIPG and…
Jaime King, mother to Katie(7), aka Katherine the Brave, and Mark Landis, father to Parker (5), describe the realities faced by parents of DIPG-diagnosed children today. DIPG, diffuse intrinsic pontine glioma, is an invariably terminal pediatric brain tumor with no change in treatment protocol for over 40 years. Parents discover…
CCTR presents Dr. Kathy Warren, top researcher in pediatric neuro-oncology at the Center for Cancer Research at the National Cancer Institute (NCI), who discusses the history of DIPG research and the nature of this strange and misunderstood tumor, challenges to treatment, and hopeful new lines of research for effective therapies…
After Jack died I learned that DIPG is responsible for most of the brain tumor deaths in children, so, how many have to die until their lives are worth saving? April 2, 2016 Santa Clarita, CA—The significant rise in awareness for the devastating lack of funding for research into causes…
Paul speaks in depth about his commitment to children with cancer, to speak for them and to carry the message that they are being systematically ignored by our medical research system. Paul volunteers for St. Baldrick’s Foundation, which gives most of it’s income to research and is the largest contributor…
Message from NIH to subscriber transmitted by Janet Demeter (JAF) 3-28-2016 Dear Colleague, The Common Fund’s Gabriella Miller Kids First Pediatric Research (https://commonfund.nih.gov/KidsFirst) program (Kids First) is developing a data resource for the pediatric research community of well-curated clinical and genetic sequence data that will allow scientists to identify genetic…
George Dahlman, CEO of the Children’s Cause for Cancer Advocacy, talks about the importance of advocacy in affecting change in legislation and the way our Administration, Congress, and Government Agencies communicate to better accommodate the needs of our children with cancer. Host Janet Demeter enjoys a rant about the “Great…
