After Jack died I learned that DIPG is responsible for most of the brain tumor deaths in children, so, how many have to die until their lives are worth saving? April 2, 2016 Santa Clarita, CA—The significant rise in awareness for the devastating lack of funding for research into causes…
Paul speaks in depth about his commitment to children with cancer, to speak for them and to carry the message that they are being systematically ignored by our medical research system. Paul volunteers for St. Baldrick’s Foundation, which gives most of it’s income to research and is the largest contributor…
Message from NIH to subscriber transmitted by Janet Demeter (JAF) 3-28-2016 Dear Colleague, The Common Fund’s Gabriella Miller Kids First Pediatric Research (https://commonfund.nih.gov/KidsFirst) program (Kids First) is developing a data resource for the pediatric research community of well-curated clinical and genetic sequence data that will allow scientists to identify genetic…
Part I: Advocate for children with cancer Gerry Tye shares his experience with his son Talin, diagnosed with DIPG in 2012, and for parents the importance of trusting one’s instincts regarding one’s own child when confronted with medical protocol for terminal illness. Gerry supports children diagnosed with cancer and their…
George Dahlman, CEO of the Children’s Cause for Cancer Advocacy, talks about the importance of advocacy in affecting change in legislation and the way our Administration, Congress, and Government Agencies communicate to better accommodate the needs of our children with cancer. Host Janet Demeter enjoys a rant about the “Great…
Jack’s Angels Foundation announces its 1st Annual “Relay for Jack!” Saturday, May 28 at Vasquez Rocks County Park in Agua Dulce, raising awareness to DIPG—cancer’s death-row for kids; the 2nd most-common pediatric brain tumor is responsible for roughly 80% of brain cancer deaths in children annually. Event proceeds support “Jack’s…
Peter Brown and Victoria Sardi-Brown tell the story of how their foundation began in 2009 after the death of their precious boy Mattie, 7, who had been diagnosed with osteosarcoma. Mattie Miracle Foundation has a powerful advocacy mission emphasizing the need for psychosocial standards of care for children with cancer…
CCTR interviews Tracy Ryan, CEO of CannaKids, an organization dedicated to providing the highest quality guidance, care, and cannabis medicine for seriously ill patients, particularly pediatric cancer patients. CannaKids was inspired by Tracy’s daughter Sophie, who was diagnosed with brain cancer at 8 1/2 months old, and is a living…
Lisa Spedale reveals the heart-wrenching motive for her involvement in one of the most genius technological advancements in the history of neuroscience. Leo Somerville of technology company Renishaw Inc was changed forever by the heart of one little girl, Kira, afflicted with terminal DIPG. Her brave fight aided the development…
Emma Wren of Alford UK, explains the realities of a DIPG diagnosis for her daughter Keira, and the experimental program with which Keira is involved to combat the deadly disease. Sharon Kane of “Funding Neuro”, joins us to discuss the technical details of the procedure and the origins of this…
