Denver CO–Morgan Adams Foundation co-founder Joan Slaughter joins us to share this organization’s 20 year history of advancing the clinical trial process for pediatric cancer in the medical research system. Her daughter Morgan had been diagnosed at 5 years old with GBM in 1997, surviving 11 months past the diagnosis…
The missing ingredient is greater public awareness to the chronic lack of adequate research funding for pediatric cancers, most of which are deadly, marginalized as rare, and devoid of solutions.  Thank you for considering this and the attached information being distributed among all members of the House of Representatives.  Your…
After months of frustrating ER visits for high fevers, Adelaide ‘Addie’ was diagnosed in November 2015 with Hepatoblastoma, a rare pediatric liver cancer; it was just four days before her 2nd birthday. Addie fought a fast-spreading disease with grace; she shared her contagious smile and joyous spirit with everyone she…
From a State Tax Measure bringing needed funds to pediatric cancer research, to leading in the country-wide movement for a DIPG Awareness Day, Pennsylvania is leading in authentic grassroots advocacy for children with cancer and their families. Bill Kohler is a highly respected and decorated veteran of the Iraq war,…
Barbara Saltzman joins us from Palos Verdes CA, home of The Jester & Pharley™ Phund, the charity that grew out of her late son David’s best-selling children’s book, “The Jester Has Lost His Jingle.” David created The Jester as his senior project at Yale before his death from cancer in…
For Immediate Release: Curing children a goal worthy of tax credits from state The Issue: State Rep. Thomas R. Caltagirone hopes to spur research that finds a cure for pediatric cancer soon. Our Opinion: Incentives to promote that goal in Pennsylvania deserves to become law. March 6, 2019, Harrisburg, PA–Pennsylvanians…
The second edition of Childhood Cancer Talk Radio’s Research Series with Children’s Cancer Therapy Development Institute features an osteosarcoma research project directed by Jin-ah Kim PhD. Originally from South Korea, Kim describes her education experience, vocational direction to cancer research, and the unique challenges and goals for the project. The…
Steven Healey shares the inspiration behind the foundation, his beautiful, forever-5 year old daughter Brooke who’s life lasted just eight months post diagnosis of DIPG, a deadly pediatric brain cancer. Healey describes the harrowing experience as a parent, but also about a new-found community of families dedicated to funding research…
‘We don’t do those anymore…’ Now what? Despite progress made, resistance to this awareness will continue to recur intermittently, like a rash, until “The Little Bill that Could” passes. This is a brief description of an occasional yet pervasive challenge which DIPG Advocacy Group has met in its visits to…
Contact: DC – Tracy Manzer (202) 225-3531 (W) / (202) 538-0641 (C) [email protected] CA – Katrina Rill (650) 342-0300 (W) / (650) 208-7441 (C) [email protected] Reps Speier, Joyce Introduce Bipartisan Resolution to Fight Deadly Pediatric Cancer Washington, DC –Today, Reps. Jackie Speier (D-San Francisco/San Mateo) and David P. Joyce (R-Cleveland),…
