May 17 is DIPG Awareness Day in California; H.Res.69 Awaits a U.S. House Vote

Most people simply don’t know that our children are not a priority, unless pediatric cancer directly impacts them or someone very close to them. May 14, Santa Clarita, CA–what began in 2014 in California as the first State Awareness Resolution for DIPG, diffuse intrinsic pontine glioma, the deadliest and theā€¦

Continue reading

A Legacy of Love and Hope: Julianna Sayler Foundation

Stacie Sayler of Walla Walla Washington tells the story of a happy family of 5 on a small farm, Eric Sayler the father is a pastor, and mom home-schools her children.Ā  One day everything changed when Stacie noticed her daughter’s eye was not tracking properly. Julianna was diagnosed shortly thereafterā€¦

Continue reading

May 17 Marks an Acton-Agua Dulce Tradition for Powderpuff and Brain Cancer

  May 2, 2018, Agua Dulce CA–Vasquez High School students in Acton are preparing for their 6th Annual Powderpuff Football Game benefiting Jackā€™s Angels, a local charity dedicated to awareness and research for DIPG, the deadliest pediatric brain cancer, and advocacy for children with cancer. The Powderpuff Game began inā€¦

Continue reading

“Lighten Our Darkness”: Two Moms Advocate for Others from Life’s Most Tragic Loss

Kirsten Finley and Jamie Franzini, both coincidentally from the same Congressional District in Florida–that of Rep. DeSantis (R-FL-6)–discuss their recent and tragic losses and resulting action in advocacy for children with cancer to inspire greater awareness for the perilous situation so many families find themselves in every day in theā€¦

Continue reading

Four Pennies Supports Project Open DIPG

Open DIPG (Diffuse Intrinsic Pontine Glioma) Research Project This research project is all about collaboration, and is the first of its kind in many ways. ā€œOpen DIPG (diffuse intrinsic pontine glioma)ā€ is the first translational, multi-institutional study that will address an unmet need for treating pediatric Central Nervous System (CNS)ā€¦

Continue reading

Hike 4 Pennies: Uniting the Childhood Cancer Community

Ginny McLean, Communications and Outreach Director for Swifty Foundation joins us to discuss the Hike 4 Pennies program with hiker Erick Montgomery who has taken on the challenge of the Pacific Crest Trail, from Tijuana, Mexico to the Canadian border to raise funds for urgently needed pediatric brain cancer research.ā€¦

Continue reading