May 17 is DIPG Awareness Day in California; H.Res.69 Awaits a U.S. House Vote

Most people simply don’t know that our children are not a priority, unless pediatric cancer directly impacts them or someone very close to them. May 14, Santa Clarita, CA–what began in 2014 in California as the first State Awareness Resolution for DIPG, diffuse intrinsic pontine glioma, the deadliest and the…

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DIPG Awareness Day—A National Movement

I’m re-posting this as, for some reason, the blog page isn’t allowing access to posts other than the one page…sorry, I’m not a tech genius and I don’t have a volunteer working on organizing our site. Original date was July 24, 2017. (H.Res.69 asks for a date henceforth, not just…

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May 17 is DIPG Awareness Day—A National Movement

I discovered it was the 2nd most common pediatric brain tumor, and responsible for the majority of pediatric brain cancer deaths each year.  If brain cancer is the leading cause of death in kids with cancer, it’s hardly irrelevant, no matter how you define ‘rare’. May 14, 2017, Santa Clarita,…

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Elizabeth Psar: Mom on a Mission Against DIPG

CCTR interviews Elizabeth Psar, an attorney with a focus in Juvenile law now on a mission against DIPG with the Julia Barbara Foundation. The discussion includes the realities of DIPG and her 2 1/2 year old daughter Julia, and the unavoidable effects of the experience of losing a child to…

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BethAnn Telford: Around the World in 7 Days for Brain Cancer

The great adventure that was the 2017 World Marathon Challenge is shared with our listeners in a big-hearted interview with BethAnn Telford, brain cancer survivor and super-athlete. Seven Marathons were run on seven different continents in just seven days time. BethAnn’s mission to cure brain cancer with ABC2 (accelerate brain…

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H.Res.69 and Supporting Events

Jack’s Angels Relay for Research #runforDIPG #CureDIPG With the introduction, January 30th, of the 2017 National DIPG Awareness Resolution (H.Res.69) by our very own Congressman Steve Knight, Jack’s Angels Foundation will be working hard to advocate for its passage and to raise awareness for the urgent need for greater pediatric…

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