200 Mile Activist Run for HRes586 Makes History for DIPG, Childhood Cancer Awareness, and the State of California

For Immediate Release pdf. version April 19, 2016 Santa Clarita, CA—Ultra-distance runner and activist for children with cancer Everett Smith of Redlands, CA and Janet Demeter of Jack’s Angels in Agua Dulce, CA team up to promote “Action Days” for HRes586 in support of children currently afflicted with DIPG and…

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“Action Days” coming for Kids on Cancer’s Death Row: HRes586 “Chad and Jack’s DIPG Resolution”

After Jack died I learned that DIPG is responsible for most of the brain tumor deaths in children, so, how many have to die until their lives are worth saving? April 2, 2016 Santa Clarita, CA—The significant rise in awareness for the devastating lack of funding for research into causes…

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Congressman Knight Celebrated as “Hero for Children with Cancer”

Congressman Knight Attends Santa Clarita Event 2/13 Celebrating HRes586, Chad and Jack’s DIPG Resolution “More still needs to be done for our kids; while I was hopeful of Moonshot, I also noticed that it continues to marginalize childhood cancer, where it should be front and center of the Initiative,” said…

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Press Release 1/13/2016

“Chad and Jack’s DIPG Resolution” (unofficially titled for Chad Carr of Michigan, and Jack Demeter, of California) http://knightforms.house.gov/news/email/show.aspx?ID=QL2FAABJSRT6G “Letter to Colleagues” by Adam Brooks (introductory letter to Resolution)      /     Resolution Text KNIGHT INTRODUCES BIPARTISAN CHILDHOOD CANCER RESEARCH BILL  CONGRESSMAN WORKING WITH AGUA DULCE RESIDENT TO INCREASE…

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For Immediate Release 10.5.15

On October 17, ‘4Another’ finishes its Across-the-USA Run for Childhood Cancer Awareness with local Jack’s Angels runner at the Santa Monica Pier. Monday, October 5, 2015, Santa Clarita CA—John McKay and Everett Smith began their cross-country run on June 6, 2015 in Virginia Beach, VA, and their final three days…

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“‘Just Say It!’–DIPG–The Run for a National Day” heralds the fight to end obscurity for DIPG in the United States.

DIPG parents must watch and wait in terror as their child disappears from this world knowing that to our current system they don’t matter. How many more of them have to die before they are a priority? This is why I’m running for a National Day. On PRWeb For Immediate…

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“Just Say It!”—the Run for a National Day for DIPG, run #2 of 4 is this Sunday in Los Angeles.

Most of the cases on the news this year of terminally diagnosed children have been DIPG, but no one knows it… Wednesday, September 2, 2015 Santa Clarita, CA—Event #2, the LA Beach Run of the “Just Say It!”—DIPG, the Run for a National Day begins this Sunday Sept. 6 at…

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Local Mom’s National Campaign for DIPG Awareness

“Just Say It!”—A Local Mom’s National Campaign for DIPG Awareness   August 17, 2015, Santa Clarita, CA—Janet Demeter is running on the heels of good fortune, the local leadership of our very own CA State Assemblyman Scott Wilk who, touched by the story of Jacks Angels Foundation, authored ACR151 which…

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Childhood Cancer STAR Act

McCaul, Van Hollen, Speier, Reed, and Capito Introduce Bipartisan Childhood Cancer STAR Act link to press release WASHINGTON, DC – Today Congressman Michael McCaul introduced the bipartisan, bicameral Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act of 2015. Congressman McCaul was joined by his fellow co-chair of the Childhood…

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