The Difference of a Decade: A Conversation with Childhood Cancer Advocate Jonathan Agin

This edition of Childhood Cancer Talk Radio gives a personal look at the landscape of childhood cancer advocacy over recent years, between parents of children afflicted with brain cancer.  For this, I have the honor of sharing conversation and perspective with fellow advocate Jonathan Agin, whose participation in the childhood…

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DIPG as Ambassador to Congress and the Public for Childhood Cancer

The Public needs powerful examples attain sufficient awareness to ensure accountability from Congress. If we want childhood cancer legislation like STAR and RACE to truly be supported, to have their respective allocations approved, to build upon and allow greater development and support for pediatric research, the Public must be aware–this…

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In Support of H. Res. 114

DIPG is a death sentence for children today, but it doesn’t have to be; this resolution is an important first step in securing the resources needed to develop better treatment options and find a cure. Congresswoman Jackie Speier (D-CA-14), leading sponsor of the DIPG Awareness Resolution Posted by the PNOC…

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To the Ends of the Earth: Juju’s Journey with Mark Hyde

Our show features a window into the experience of a father, Mark Hyde, who literally chose to go to the ends of the earth for his daughter, honoring her life with a journey to the north pole. While she was fighting rhabdomyosarcoma, Juliet went with her dad, sister, and mom…

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Sara’s Cure Has Hope with CC-TDI’s Lissett Bickford Ph.D.

Sara’s Cure is a grassroots, race-against-time campaign focused on funding critical research to find a cure for Clear Cell Sarcoma. Lissett Bickford, now with Children’s Cancer Therapy Development Institute, a non-profit biotech company in Beaverton Oregon dedicated to eradicating childhood cancer, earned her PhD in Bioengineering at Rice University in…

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Research Edition #3: Hepatoblastoma and the Foundation for Addie’s Research

After months of frustrating ER visits for high fevers, Adelaide ‘Addie’ was diagnosed in November 2015 with Hepatoblastoma, a rare pediatric liver cancer; it was just four days before her 2nd birthday. Addie fought a fast-spreading disease with grace; she shared her contagious smile and joyous spirit with everyone she…

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CC-TDI Research Series I: DIPG Tumor Cell Hotel

Dr. Charles Keller, Scientific Director of the Children’s Cancer Therapy Development Institute, joins us with Dr. Anju Karki, post-doctoral fellow and DIPG Tumor Cell Hotel project leader describe this creative design to affect a real solution for children diagnosed with arguably the deadliest pediatric brain cancer, diffuse intrinsic pontine glioma.…

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Project Haystack Part II

Molly Lindquist, CEO of Children’s Cancer Therapy Development Institute in Beaverton OR, joins us to share her personal story of cancer survival and the importance of the parent-funded research at cc-TDI. We continue exploring the research Project Haystack for rhabdomyosarcoma, and hear from two more foundations helping to fund this…

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Part I: “Project Haystack” at Children’s Cancer Therapy Development Institute

Dr. Charles Keller, Scientific Director of the Children’s Cancer Therapy Development Institute, describes for us in opening the show, the ongoing work at the Institute funded by parent-led foundations in its quest to make all forms of childhood cancer survivable, specifically Project Haystack, an international collaboration in rhabdomyosarcoma research. In…

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“Run the Rocks!” Event Supports Research Project for Pediatric Brain Cancer

March 6, 2017, Santa Clarita, CA–Jack’s Angels Foundation of Agua Dulce, CA is organizing the trail running event “Run the Rocks!”—including a family walk—at Vasquez Rocks County Park 10700 Escondido Canyon Rd, Agua Dulce 91350, on Sunday April 30th 2017, with races beginning at 9am.  The event opens at 8:00 am…

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