Appeal for a Presidential Proclamation for the Deadliest Pediatric Brain Cancer

On Day 23 of Brain Tumor Awareness Month in 2018, it seemed apropos to share this appeal: The Honorable Donald J. Trump President of the United States The White House Office of Proclamations 1600 Pennsylvania Avenue NW Washington, DC 20500   Dear President Trump,   On behalf of the DIPG…

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May 17 Marks an Acton-Agua Dulce Tradition for Powderpuff and Brain Cancer

  May 2, 2018, Agua Dulce CA–Vasquez High School students in Acton are preparing for their 6th Annual Powderpuff Football Game benefiting Jack’s Angels, a local charity dedicated to awareness and research for DIPG, the deadliest pediatric brain cancer, and advocacy for children with cancer. The Powderpuff Game began in…

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Death Sentence for 300 Children Each Year in the United States Motivates DIPG Advocacy Group Trip to Washington DC

April 14, 2018 The current medical research system…is non-apologetically and systematically divested of concern. April 12, 2018, Santa Clarita, CA–The DIPG Advocacy Group, organized by childhood cancer advocate Janet Demeter of Agua Dulce, CA is preparing a trip to Washington DC for the week of April 16, 2018 to visit…

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Congressman Knight Champions Awareness Legislation for Children with Cancer

January 30, 2018, Santa Clarita, CA–One year ago today, Congressman Steve Knight (R-CA-25) introduced with Congresswoman Jackie Speier (D-CA-14) H.Res.69, the National DIPG Awareness Resolution to the House Energy and Commerce Committee.  The Resolution persists today, amid an intensive political landscape in 2018, for children with the deadliest pediatric brain…

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Congressman Knight Champions Awareness Legislation for Forgotten Children

January 23, 2018, Santa Clarita, CA–Amid an intensive political landscape in 2018 persists an National Awareness Resolution, H.Res.69, for children with the deadliest pediatric brain cancer, DIPG:  diffuse intrinsic pontine glioma.  Not only does the bill call for an Awareness Day for these children and their families, May 17, it…

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H.Res.69: Crucial Awareness Supports Greater Research from the Tragic Example of DIPG

Dr. Michelle Monje-Deissiroth of Stanford University and Dr. Adam Green of University of Colorado, Denver, join us to discuss the breadth of their research as pediatric neuro-oncologists, specifically regarding DIPG, diffuse intrinsic pontine glioma. They discuss how they were inspired to study this particular disease as a focal point for…

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A Pioneering Journey, with Emma Wrenn

Emma Wrenn joins us to share her experience with her daughter Keira, who just passed away this last August as a result of her battle with DIPG, diffuse intrinsic pontine glioma. Keira’s case was public, and many of us around the world followed her story. Emma shares candidly what life…

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Roy’s Run for Christopher

Who knew so much was beginning in Santa Clarita, CA, a medium-sized community with a significant influence and leadership in caring for others.  Childhood Cancer is not a comfortable subject for anyone, yet the unspoken rule of family is ingrained in certain members of this community, and it dominates here.…

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Help End Obscurity for DIPG and Pediatric Cancer

Rally-On for H.Res.69!  Help End Obscurity for DIPG and Pediatric Cancer February 19, 2017, Agua Dulce, CA—Jack’s Angels Foundation is calling on the Childhood Cancer Community for support in rallying Congress for the 2017 National DIPG Awareness Resolution, H.Res.69.   It raises awareness to the realities of pediatric brain cancer, and…

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4th Annual Santa Colorita Run Includes “Skip for Jack” Tribute to Children with the Deadliest Pediatric Brain Cancer, DIPG

For immediate release: 4th Annual Santa Colorita Run Includes “Skip for Jack” Tribute to Children with the Deadliest Pediatric Brain Cancer, DIPG February 18, 2017, Agua Dulce CA—The Santa Colorita 5k Fun-Run on February 25, 2017 at Castaic Lake Recreation Center in Castaic, CA, produced by the Santa Clarita Valley…

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