November 13, 2016 Re: SOS; American Children Dying Daily #CureDIPG #JacksAngels DIPG Report Letter to President Obama 9/6/2016 H.Res.586 To the Honorable President-Elect Trump and his Staff: I write to you with great hope in my heart that indeed the change you represent…
This link will take you to the Scientific American article online about DIPG. Though technically a rare disease, DIPG is arguably significant. By Esther Landhuis on October 28, 2016, Scientific American online Scientists Tackle Lethal Childhood Brain Cancer In precision medicine era legacy gifts of patient brain tissue reveal disease mechanisms…
CCTR intereviews Marisa Martinez, mom to Zamora Moon, a little 9-year old girl battling DIPG, diffuse intrinsic pontine glioma, arguably one of the deadliest cancers which is almost exclusively pediatric. Her pioneering journey into the unknown includes treatments in Germany and the UK. Lisa Spedale, who’s daughter Kira was the…
There is a specialized killer on the loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. September 6, 2016 Dear President Obama, I’ve written to you a…
There is a specialized killer loose taking the lives of 350 children a year in our country with certain regularity; I believe we’d be using whatever resources necessary to track him down if he were a person. Dear President Obama, …
You heard it here, first! President Barack Obama’s 2016 Childhood Cancer Awareness Proclamation. CCTR interviews Beth Stefanacci and Carina Trenka of Go4theGoal, a dynamic support organization for children with cancer based in Cherry Hill, NJ, and one of the beneficiaries of the historic “Golden Steps for Pediatric Cancer Awareness Walk.”…
By Mia Summerson [email protected] Original article here Tune in to Childhood Cancer Talk Radio 9/1/2016 Live at 4pm EST from the Event!!! One year after his cancer diagnosis, Shawn Kennedy and his family are still fighting the good fight, but now they’re getting proactive and shifting their focus toward generating…
CCTR interviews Jonathan Agin JD, father of Alexis who perished to DIPG in 2011 and 4 other young children, and official counsel and co-founder of the Children’s Cancer Therapy Development Institute. One of our country’s foremost advocates for children with cancer, Jonathan describes the complexity of our medical research system…
Cancer Moonshot Summit Report—Regional, Jack’s Angels Foundation, Santa Clarita, CA SCVTV Around Town Report On June 29, 2016, we were a group of 17 convening at The Master’s College in Santa Clarita for one of the few Southern California Regional Moonshot Summits, from a diversity of backgrounds and experience with…
CCTR interviews Michael Esposito, father of five, teacher, and basketball coach, the man responsible for connecting people in his town of Niagra Falls, NY which will witness the most prominent and powerful display of support for children with cancer this year, 2016. Baby Shawn with DIPG and his meeting Stephen…
