Ryan Agnew gives us a remarkable window into his beautiful home life with wife Alison, and two children, Aspen who is turning 6 years old, and her little brother not quite two. Aspen is feeling well despite unfortunate scans of progression from DIPG, and now secondary tumors, and is approachingā¦
“…This is the reality for childhood cancer; we all assumeāeven the President!–that if we invest in something it will of course trickle down to our children. This is the wake up call of #Moonshot4Kids: medical research investment into cures for children is one area where our priorities as Americans are completely upside-down. You don’t know it until it directly affects you. We spend more dollars on potato chips annually than our government invests into childhood cancer…”
This episode features an interview with Jessica Hester, CEO of Brooke’s Blossoming Hope for Childhood Cancer Foundation, a tour-de-force organization inspired by the beautiful life of Brooke Hester. The foundation’s two-fold mission first empowers others, especially children, to make a difference for children with cancer by raising awareness through serviceā¦
Jeni Miller joins us from her home in New Lothrop Michigan to share the story of Braden āBuddyā Miller and the Foundation that is now his legacy. Ā The Team Buddy Forever Foundation is on mission to fund awareness of pediatric brain cancers while assisting families of children diagnosed with DIPG,ā¦
For this special edition of Childhood Cancer Talk Radio, our guest is a childhood cancer survivor of a diagnosis which, statistically speaking, takes most every life afflicted. Ā Numbers and statistics guide our perspective when weāre in uncertain territory. Ā Those who do survive against unbelievable odds bring us all hope, traversingā¦
Paula Carter, founder of the Scott Carter Foundation in Tulsa, OK, joins us with Caitlyn Barrett, National Director of Research and Programs for CureSearch, to discuss their collaboration in supporting a new clinical trial for DIPG. The Scott Carter Foundation has been supporting childhood cancer research for three decades inā¦
Catharine Young, Executive Director of the Shepherd Foundation (Alexandria, VA) visits with us to give history and background to the Cancer Patient Equity Act of 2021, H. R. 5377, newly introduced to the US House of Representatives. With a focus on equity for patients with rare cancers, which comprise aā¦
Awareness Campaign Agenda for H. Res. 404 and legislation for childhood cancer/disease. DIPG Advocacy Group is not a legally incorporated entity, but a coalition or alliance (unofficial corporate body) of childhood cancer organizations and individual advocates supporting the National DIPG Awareness Resolution, which has had 3 Senate and 4 Houseā¦
Dr. Burzynskiās cancer research and patient care has been inspired by the philosophy of the physician Hippocrates: āFirst, do no harmā. The Burzynski Clinic (Houston, TX) approach to treatment is āpersonalizedā in an attempt to maximize effectiveness and minimize side effects for each cancer patient. Ā However the success of hisā¦
On July 6, 2008, the lives of Dena and Billy Sherwood changed forever when their then 13-month-old son, Billy Jr., was diagnosed with Neuroblastoma, a very aggressive cancer of the sympathetic nervous system that most commonly occurs in infants and children under the age of five. In August ofā¦
