When Tracy and Josh Ryan’s daughter Sophie was diagnosed with a low-grade brain tumor at just 8 ½ months old, they knew they had to take action. Their wellness journey began when Tracy’s family became a featured family in the Ricki Lake produced Netflix documentary, Weed the People. This led…
In our many discussions with parents of children afflicted with brain cancer, perhaps the most telling are those of scientist parents who, like all other parents, are left to their own devices to try to save their children. Philip Tan’s son Xavier, who was a in his prime as a…
Parent advocacy for childhood brain cancer at the state level in South Carolina with Randy Hinton begins today’s show, as he shares his relationship with the South Carolina Department of Environmental and Health Control, and the SC Cancer Registry which operates under that department. Randy’s advocacy supported the 2021 South…
Lynette and Marc Apodaca’s son Marc Jr was diagnosed in 2007 with a diffuse intrinsic pontine glioma (DIPG). The couple quickly realized how little help there was in the form of treatment, information and support for the families facing this deadly brain tumor. They found in their journey that once…
Ryan Agnew gives us a remarkable window into his beautiful home life with wife Alison, and two children, Aspen who is turning 6 years old, and her little brother not quite two. Aspen is feeling well despite unfortunate scans of progression from DIPG, and now secondary tumors, and is approaching…
“…This is the reality for childhood cancer; we all assume–even the President!–that if we invest in something it will of course trickle down to our children. This is the wake up call of #Moonshot4Kids: medical research investment into cures for children is one area where our priorities as Americans are completely upside-down. You don’t know it until it directly affects you. We spend more dollars on potato chips annually than our government invests into childhood cancer…”
This episode features an interview with Jessica Hester, CEO of Brooke’s Blossoming Hope for Childhood Cancer Foundation, a tour-de-force organization inspired by the beautiful life of Brooke Hester. The foundation’s two-fold mission first empowers others, especially children, to make a difference for children with cancer by raising awareness through service…
Jeni Miller joins us from her home in New Lothrop Michigan to share the story of Braden “Buddy” Miller and the Foundation that is now his legacy. The Team Buddy Forever Foundation is on mission to fund awareness of pediatric brain cancers while assisting families of children diagnosed with DIPG,…
For this special edition of Childhood Cancer Talk Radio, our guest is a childhood cancer survivor of a diagnosis which, statistically speaking, takes most every life afflicted. Numbers and statistics guide our perspective when we’re in uncertain territory. Those who do survive against unbelievable odds bring us all hope, traversing…
Paula Carter, founder of the Scott Carter Foundation in Tulsa, OK, joins us with Caitlyn Barrett, National Director of Research and Programs for CureSearch, to discuss their collaboration in supporting a new clinical trial for DIPG. The Scott Carter Foundation has been supporting childhood cancer research for three decades in…
