Christina Bouraimi (mother) and Nick Maroulis (nurse) join us on CCTalkRadio from Athens, Greece to tell the story of a brave young man Theodore who lives day by day with progressed symptoms of Batten Disease, CLN3. There are 10 identified types of Batten Disease, which is itself one of approximately 50…
On April 13 2017 Childhood Cancer Talk Radio interviewed Roy Wiegand of Burbank CA, suburb of Los Angeles, a local free-lance musician with an evolving career as ultra-distance runner and advocate for children with cancer. Roy began running later in life in his early forties, and has been “ultra-running” for about…
Jenny Mosier, Executive Director of the Michael Mosier Defeat DIPG Foundation joins us to discuss a 50-State Project for DIPG, calling for volunteers in as many states as possible to work for a gubernatorial or state legislature proclamation for May 17 2017 DIPG Awareness Day. The 2017 National DIPG Awareness…
CCTR interviews Elizabeth Psar, an attorney with a focus in Juvenile law now on a mission against DIPG with the Julia Barbara Foundation. The discussion includes the realities of DIPG and her 2 1/2 year old daughter Julia, and the unavoidable effects of the experience of losing a child to…
Christina Bouraimi will join us on Childhood Cancer Talk Radio (CCTalkRadio) on April 6 2017. Author: “Gregster60.com” Link to blog: http://www.gregster60.com/blog/face-to-face-a-fairy-tale FACE TO FACE: A FAIRY TALE Awestruck! As the saying goes, a picture is worth a thousand words. But it is also true that some pictures leave you speechless.…
Childhood Cancer Talk Radio interviews Patrick Mahoney from the Office of Advocacy Relations (OAR) at NCI. The March 16 discussion included a brief history of the National Cancer Institute, it’s role as a scientific research institution as well as resource of support and direction for millions afflicted with cancer. “We…
