Part I: Advocate for children with cancer Gerry Tye shares his experience with his son Talin, diagnosed with DIPG in 2012, and for parents the importance of trusting one’s instincts regarding one’s own child when confronted with medical protocol for terminal illness. Gerry supports children diagnosed with cancer and their…
Jack’s Angels Foundation announces its 1st Annual “Relay for Jack!” Saturday, May 28 at Vasquez Rocks County Park in Agua Dulce, raising awareness to DIPG—cancer’s death-row for kids; the 2nd most-common pediatric brain tumor is responsible for roughly 80% of brain cancer deaths in children annually. Event proceeds support “Jack’s…
CCTR interviews Tracy Ryan, CEO of CannaKids, an organization dedicated to providing the highest quality guidance, care, and cannabis medicine for seriously ill patients, particularly pediatric cancer patients. CannaKids was inspired by Tracy’s daughter Sophie, who was diagnosed with brain cancer at 8 1/2 months old, and is a living…
Lisa Spedale reveals the heart-wrenching motive for her involvement in one of the most genius technological advancements in the history of neuroscience. Leo Somerville of technology company Renishaw Inc was changed forever by the heart of one little girl, Kira, afflicted with terminal DIPG. Her brave fight aided the development…
Congressman Knight Attends Santa Clarita Event 2/13 Celebrating HRes586, Chad and Jack’s DIPG Resolution “More still needs to be done for our kids; while I was hopeful of Moonshot, I also noticed that it continues to marginalize childhood cancer, where it should be front and center of the Initiative,” said…
Lisa Solis DeLong, Author of “Blood Brothers”–a memoir of loss and faith while raising two sons with cancer Lisa’s book, “Blood Brothers” http://bit.ly/LisaDelong / Lisa’s Tedx talk on “Death Cafe” http://bit.ly/lisadelong Lisa Solis DeLong, author, nurse, bereavement facilitator, patient advocate, and last but not least–mom!–joins us for a candid discussion…
“Chad and Jack’s DIPG Resolution” (unofficially titled for Chad Carr of Michigan, and Jack Demeter, of California) http://knightforms.house.gov/news/email/show.aspx?ID=QL2FAABJSRT6G “Letter to Colleagues” by Adam Brooks (introductory letter to Resolution) / Resolution Text KNIGHT INTRODUCES BIPARTISAN CHILDHOOD CANCER RESEARCH BILL CONGRESSMAN WORKING WITH AGUA DULCE RESIDENT TO INCREASE…
Chad and Jack’s DIPG Resolution and Childhood Cancer; is it relevant? The Resolution is named for Chad Carr of Michigan and Jack Demeter of California, both beloved and perished to DIPG. …this is about making a decision, a decision to not look away, but to acknowledge the relevance of life.…
For partnering organizations, groups, individuals. Jack’s Angels Foundation: Advocacy Report and General Update for Collaborative Individuals, Groups, and Organizations “What your money’s been doing.” General Description: This follows a journey in advocacy for children and their families with DIPG, that more can be done for them in the future, and…
In Loving Memory of Evylah d. 10.10.15 September was Childhood Cancer Awareness Month, but for some reason the President refused to flood-light the White House gold, even for a day, as it goes pink for breast cancer, rainbow for same-sex marriage, and the list goes on. To add insult to injury,…
