CCTR intereviews Marisa Martinez, mom to Zamora Moon, a little 9-year old girl battling DIPG, diffuse intrinsic pontine glioma, arguably one of the deadliest cancers which is almost exclusively pediatric. Her pioneering journey into the unknown includes treatments in Germany and the UK. Lisa Spedale, who’s daughter Kira was the…
By Mia Summerson [email protected] Original article here Tune in to Childhood Cancer Talk Radio 9/1/2016 Live at 4pm EST from the Event!!! One year after his cancer diagnosis, Shawn Kennedy and his family are still fighting the good fight, but now they’re getting proactive and shifting their focus toward generating…
Jonathan Agin, Huffington Post 7/28/2016 http://www.huffingtonpost.com/jonathan-agin/a-grieving-fathers-invita_b_11197554.html Mr. Trump and Ms. Clinton: Congratulations, each one of you has presumptively garnered the nomination of your political party and will find yourself on the election ballot in November. Up to this point, hundreds of millions of dollars have been spent in the political…
Childhood Cancer Talk Radio interviews Jesse Shumaker, founder of The Cure Starts Now Nebraska Chapter upon the loss of his 8 year old daughter Madelyn, who was afflicted with diffuse intrinsic pontine glioma (DIPG). The Cure Starts Now is non-profit charitable organization dedicated to funding DIPG research, raising well…
For immediate release Relay for Jack: Local Communities come together in support of National DIPG Awareness Week May 24, 2016, Santa Clarita, CA—HRes586 was introduced to the House of Representatives Energy and Commerce Committee on January 13, 2016, by Congressman Steve Knight (R-CA-25) the day after the Moonshot Initiative was…
Childhood Cancer Advocacy 101 What if it were your child? God help you…you’d discover very quickly that the medical research system doesn’t consider your child’s life investment-worthy, that no therapies have been developed for this disease for decades, and that urgency of need and potential years of life lost are…
Jaime King, mother to Katie(7), aka Katherine the Brave, and Mark Landis, father to Parker (5), describe the realities faced by parents of DIPG-diagnosed children today. DIPG, diffuse intrinsic pontine glioma, is an invariably terminal pediatric brain tumor with no change in treatment protocol for over 40 years. Parents discover…
“Chad and Jack’s DIPG Resolution” (unofficially titled for Chad Carr of Michigan, and Jack Demeter, of California) http://knightforms.house.gov/news/email/show.aspx?ID=QL2FAABJSRT6G “Letter to Colleagues” by Adam Brooks (introductory letter to Resolution) / Resolution Text KNIGHT INTRODUCES BIPARTISAN CHILDHOOD CANCER RESEARCH BILL CONGRESSMAN WORKING WITH AGUA DULCE RESIDENT TO INCREASE…
For partnering organizations, groups, individuals. Jack’s Angels Foundation: Advocacy Report and General Update for Collaborative Individuals, Groups, and Organizations “What your money’s been doing.” General Description: This follows a journey in advocacy for children and their families with DIPG, that more can be done for them in the future, and…
Please help us get a National Day for our DIPG heroes! This could seriously help our kids and childhood cancer research. That’s right, you really do have the power to create change! All it takes is clicking a button, but you have to actually do it for it to work,…
